The SDRNT1BIO Steering Committee consists of diabetes consultant doctors from participating Scottish Health Boards, a patient representative and representatives from the study funders.
The SDRNT1BIO is a research collaboration involving researchers, clinicians and people with diabetes and managed by the SDRNT1BIO steering committee.
SDRNT1BIO Steering Committee
Study Management Team
The SDRNT1BIO Study Management Team consists of:
- Principal Investigator, Professor Helen M Colhoun
- Biobank Lab Lead, Professor Colin N A Palmer
- Database Manager, Dr Stuart McGurnaghan
- Software Developer, Dr Luke Blackbourn
- Study Coordinator, Andrew Wilson
To contact the Study Coordinator, email: SDRNT1BIO@ed.ac.uk
Information in SDRNT1BIO
A full description of the study is given in the published paper:
‘Cohort Profile: Scottish Diabetes Research Network Type 1 Bioresource Study (SDRNT1BIO)’.
Participants provided biological samples (biosamples) which are now stored as a bioresource of serum, plasma, urine and DNA.
Physical measurements taken included blood pressure, weight, height, waist, hip and bioimpedance (body composition and condition).
Participants completed a questionnaire covering their diabetes diagnosis and treatment, history of any diabetes complications, and lifestyle factors such as physical activity, smoking and alcohol habits.
Links to other databases
SDRNT1BIO participants agreed to have their e-health care data from the Scottish national clinical diabetes database (SCI-Diabetes) and national health data linked to the SDRNT1BIO. Such data is pseudonymised before analysis.
These data linkages include data on hospital admissions, annual diabetic clinical reviews, retinopathy screening, renal replacement register and prescriptions.
Data Governance
Data access is managed by an Access Committee and follows controlled data governance procedures.
The study was carried out in accordance with the ethical principles in the Declaration of Helsinki and was approved by the Tayside Research Ethics Committee (Reference 10/S1402/43).
Biosamples are held under the governance of the Tayside Tissue Bank located at Ninewells Hospital, Dundee.
Data linkages are approved by the Public Benefit and Privacy Panel for Health and Social Care (Reference 1819-0315), the NHS Central Register (NHSCR), and the Scottish Renal Registry.
Data and samples access: this study was set up as a collaborative research tissue bank and we welcome proposals for collaborative research. Please contact the study coordinator: SDRNT1BIO@ed.ac.uk. A data access committee reviews such applications and follows controlled data governance procedures.
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